In September last year, I posted this:
We get to meet some amazing people out here on the road
Everyday, there’s at least one person who stays with you
In your thoughts, I mean
Over the years, we have met some incredible people with some equally incredible stories
I wanted to tell you about a kid Dad met years ago
I remember Dad coming home from one of his first tours in the 80’s
He told me all about a 10 year old kid he met.
He’d received a letter from this boy’s family, asking if Dad could maybe meet with him when he was doing a show in their town
His name was Tom
Tom was a huge fan
Tom had Cystic Fibrosis
His prognosis was, in Dad’s words, devastating
Tom was living in a remote outback town in Australia called Coober Pedy. It’s in South Australia, and is often referred to as the opal capital of the world
So the day that Dad met Tom was a great one
They hung out together
Dad took him in their plane for a ride
Took him to the soundcheck and let him check out how all the equipment works at the shows
Tom loved it
I know Dad was blown away by this little kid
Such a personality, with an amazing attitude to life and his illness
Long after Dad said goodbye to Tom, he was deeply affected by his story
Sometimes life is just bullshit isn’t it?
There was nothing fair about what was happening to Tom
Dad never heard anything from, or about Tom after that
But he never forgot
Some 15 years later, a guy cam up to Dad at a show in Sydney
Do you remember years ago when you met a sick kid in Coober Pedy?
Dad told him he did
Well, do you remember signing your Los Angeles Angels baseball cap for him?
Dad said, yeah, of course he remembered
Well I still have that hat
It was Tom
And didn’t that just bring us all undone?
So here’s Tom, who was never expected to make it, all these years later
With his beautiful fiance Kylie
Tom is getting married next year
Who says there are no happy endings?
*****************************
HERE’S THE UPDATE:
Tom & Kylie got married last month!
And they came to the show last night in Orange
Tom is in pretty much perfect health these days
Kylie has just had major surgery on her leg
And has to wait to have one more operation to hopefully have her leg be A-OK again
Once that’s sorted, she can go back on the list
To wait for a kidney donor
She told me the wait, on average, can take anywhere between 4 & 8 years
Yeah, that’s YEARS
I hope it happens for her so much sooner than that
Kylie has already been through one kidney transplant (donated from her Mum)
That ultimately didn’t work out
Kylie said all she really wants is to have her life back again
I can’t imagine the strain that something like this puts on a relationship
Kylie said that Tom has been amazing through it all
From making sure she’s eating right
To carrying her when she’s having trouble walking
Better or worse
That’s what it’s all about isn’t it?
I told Kylie that they are getting their ‘worse’ out of the way while they’re still newlyweds
So that the rest of their lives can be spent enjoying the ‘better’
No one deserves it more
x
Are you an organ donor?
In the UK http://www.organdonation.nhs.uk/ukt/default.jsp
Australia http://www.donatelife.gov.au/
USA http://organdonor.gov/
Wow, wonderful story. I am so glad to see so much of a happy ending! I wish them both the very best and big hugs to you–and to your dad, for his big heart.
But then big hearts run in your family, don’t they?
huggs to you both,
what can we do to help?
My best suggestion would be to register as an organ donor
In the UK http://www.organdonation.nhs.uk/ukt/default.jsp
Australia http://www.donatelife.gov.au/
USA http://organdonor.gov/
Thanks Robin
x
Maybe the bloke who thinks that your show was not suitable for his club in Orange should read this blog and see what you and dad are really like in real life and that the act on the stage stays on the stage. Well done. It shows what you are really like. (leaving Sydney now to see you in Dubbo Tuesday)
What a fabulous story!
All the best to them and for their future, let’s hope there’s a transplant in it for her.
Stop it you… fab post Jen… *sniffle*
Am an organ donor already (although going on recent experience, they aren;’t worth having!). But if I wasn’t I WOULD be now…
Hugs to all
♥
BB
WHAT CAN I SAY TO THAT STORY ? DEAR GOD I WISH BOTH OF THEM ALL THE LOVE AND LUCK IN THE WORLD.JENNY I DO HOPE KEV WASNT USING SOME OF THE WORDS IN USED HIS SHOW WHEN I CAME TO SEE HIM WHEN HE WAS SINGING WITH TOM AS A YOUNG BOY ????? LOL.
BLESS YOU BOTH AND REALLY HOPE TO SEE YOU BACK IN THE UK REAL SOON. YOU GUYS ARE BRILLANT. LOVES AND HUGS. LUCY XOXO (((X)))
Great story and have registered for organ donation. Something many of us sat we will do but don’t get round to it.
Suzie x
oh gee jen …. normally i’m still pissin myself laughin when i get to this part ………. not this time , im sittin here bawlin ,tears streamin down my face ..and yes i am an organ donor , gee id give you one now darl if i could , i wish you two all the best,and good luck …what an inspiration !!!!!!!!!!!!!!!!
By the way…. I am a dude, not a woman 🙂
I didn’t call you a woman, DUDE!! x
Crap Jenny, Tears in my eyes as I read this story, so sad to have lost yet another young happy spirit, my heart goes out to Tom….PERSPECTIVE people, be happy for what u do have……